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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 14, 2023 | Replies (2164)

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@athenalee

I unfortunately agree with you. I have neuropathy and an autoimmune disease. I’ve posted on this discussion previously. After both vaccine shots my neuropathy symptoms increased significantly. They have leveled off, but at a higher level than previously. I’ve only been having neuropathy symptoms for about five months. Except for tremors, which my be related to medications I take, the numbness, pain, and tingling was very slow to come on until receiving the vaccine.

I recently had my first visit to the neurologist, so the origins of my neuropathy are not yet determined. Although he suspects its related to the autoimmune disease I have. He also was not surprised when I told him of the increased symptoms after the vaccine, as it is designed to build immunity and could potentially have an impact on people with certain types of autoimmune caused neuropathy.

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Replies to "I unfortunately agree with you. I have neuropathy and an autoimmune disease. I’ve posted on this..."

Hi @athenalee I am sorry to hear your neuropathy symptoms have increased. Seems many people experience different symptoms with the vaccine(s). All I know is I am trying to avoid an exacerbation of my neuropathy symptoms by waiting for more information as it becomes available. Since this vaccine was approved as an emergency medication I am being cautious. Whatever antibodies(good or bad) it creates in our bodies we are stuck with them. There is no reversal and no legal action a person can take. I do not want to take a chance on worsening neuropathy when my risks are low for contracting the virus. I understand the vaccine provides protection from severe symptoms. Funny, I always thought that a vaccine gives you immunity to a disease. Clearly that is not the case for the covid-19 virus. We can see on Mayo Clinic Connect many members are desperately trying to find ways to decrease their neuropathy pain. I am sorry to hear they found the reverse. I wish everyone all the best and hope their neuropathy symptoms return to their normal. Toni

I've been dealing with my neuropathy for many years and was finally in a pretty good place...until the vaccine. I'm sleeping a lot since my 2nd shot because I just can't handle the pain or fight my exhaustion. I believe the vaccine is messing with more than my neuropathy now. Hopefully my doctor will be able to shed some light on all this and hopefully nothing will be permanent