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@judyem

I just got diagnosed with MAI and started the antibiotic treatment. Just wondering how you are doing..
Thanks.

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Replies to "I just got diagnosed with MAI and started the antibiotic treatment. Just wondering how you are..."

I have good days and bad days, nausea is my main problem. I don't have a good appetite either. I go back to Mayo in January, 4 months on meds and I had a clear sputum culture though. Trying to stay positive and busy.......
Kay S

Hello Kay, that nausea is REALLY tough .. yuck. Has it done ANY good to try different times of day for the different meds? .. or with or without food? I know I really had to do some fine tuning to figure out which one/when. If that doesn't do it .. REALLY discuss it with the doctor because you should be able to isolate WHICH med seems to be the worst .. especially if you do the experimenting with timing?

Also in terms of appetite .. I lost 18% of my body weight so I decided it was more important to just get some calories in than to worry temporarily about anything else so I'll tell you a secret! I ate bacon for breakfast every morning and about 1/5 a gallon of DELICIOUS ice cream every night! I also drank ice cold Ensure during the day. I'm not recommending it to anyone else but it did help me over the hump. Fact is .. as I got better it was REALLY tough giving up that darn ice cream .. had to ban it from the house!

Hope the above helps in this tough time .. so sorry it is happening for you. I promise you .. it WILL get better .. just hang in there Kid .. we are all rooting for you! Sending you a Big Hug! Kathering