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TS-HDS Antibody and Small Fiber Neuropathy

Neuropathy | Last Active: Nov 13, 2023 | Replies (156)
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@elki0475

Hi,

I have Small Fiber Neuropathy With Autoantibodies TS-HDS and my autoimmune doctor is recommending IVIG. Since IVIG is not FDA approved to treat this I am having trouble with insurance. Does anyone know of any clinical trials? I found one at Beth Israel that has been suspended but no other active trials.

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Replies to "Hi, I have Small Fiber Neuropathy With Autoantibodies TS-HDS and my autoimmune doctor is recommending IVIG...."
John, Volunteer Mentor | @johnbishop | Apr 8, 2021

Hello @elki0475 - Welcome to Mayo Clinic Connect. I was not able to find an active IVIG clinical trial for small fiber neuropathy with TS-HDS either. I did see one at Loyola University that had a start date of Jan 2022 with 20 participants but it was suspended also - https://www.smartpatients.com/trials/NCT04153422 It could all just be due to COVID.

Have you thought about other alternatives? There is another discussion where members have shared their experience and what helps them you might find helpful.
- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

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