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Almost pure blood and blood clots in urine
Kidney & Bladder | Last Active: May 15 9:54am | Replies (61)Comment receiving replies
I am happy that you are taking a positive attitude to all of this. And at the same time I am sharing your frustration at the unknowing. I want to commend you for your commitment to advocating for yourself and for working in communicating with your doctors.
I hope and I pray that the doctors can provide you with the information and the support for whatever you decide about any extra testing. If I or a loved one were in your situation, I would want to know: Is there a recommended time frame to do the tests to get the possible information? What kind of information would the tests provide? And what would be the available treatment options for a possible diagnosis? And my 'all time favorite' question is: What would you (doctor) say to your son if he were in my place?
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You should get an email notification for this message because I am sending it as a REPLY to your post.
I am going to send a 2nd post to you about how the New changes on Connect.
Replies to "I am happy that you are taking a positive attitude to all of this. And at..."
Rosemary and others, just to update....the bleeding and passing clots started again so I saw my NP on 4/15 and my leukocyte count up to 2+ and protein 2+, leukocytes being 1+ and protein trace at urologist on 3/29. So I talked her into trying 500mg cephalexin every 8 hours instead of 12 for 14 day. The day after I started the antibiotic (Fri. 4/16) I passed A LOT of blood and clots then back to dark yellow that night. 4 days later on the 20th blood back in the evening and when got up to urinate at around 2am had to push to get urine started....really big clot passed, but thankfully passed. Reddish urine continued, then through today mostly between cola colored and amber, until just now when passed fresh blood again and a small clot. Have not heard back on latest culture but will call tomorrow....nothing showing up in culture so urologist saying not an infection, but confused because of leukocytes. I have follow-up with my NP on Wednesday the 28th for another urine dip stick test to see where leukocytes are at, and will ask for another kidney function test (eGFR) and see if there is any test for heart problems, as am now scheduled for CT urogram on May 3. Has anyone had a CT urogram and did it show anything CT scan and Renal ultrasound did not? Thank you all for your support and being there!
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Thank you so much! I am leaning towards no further testing until I see if "symptoms" (gross hematuria) occur again. The longest I can tell that I went without gross hematuria during all this was about 15 days after the one-time nitrofurontoin 7-day course I was prescribed on December 4 after seeing urologist's nurse when I had extreme blood and clots and vomiting the morning I saw her. The symptoms of green urine then cloudy urine reappeared December 24 but urologist "brushed it off" when I told him. If I go at least that long with no further symptoms I will wait; if the gross hematuria appears again I will undergo the CT urogram and another cystoscopy. Will keep all updated and of course "check back" on others going through similar situations. The only reason I am "leaning" this way is that all tests and scans also have their own possible "repercussions" and do not want to chance unless their is a definitive need for them.