← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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@johnbishop

I haven't provided an update on my polymyalgia rheumatica (PMR) for awhile so thought I would find out how others are handling COVID and other vaccines along with their PMR. My PMR is still in remission although I do have some days that I'm a little stiff when I get up in the morning. I do about 30 minutes of non-cardio riding on my cross-fit exercise bike (think slow motion 🙂) and continue to watch what I eat to keep my weight under control. I've had both Pfizer COVID shots and my first Shingrix vaccine with only minor side effects which are the normal ones others have reported - sore arm after the 1st Pfizer shot, extreme fatigue day 2 after the 2nd shot. Just a sore arm the 1st day after the Shingrix shot.

@beryl @kdmorris @alanbruce @lindapc @rolandhp @kdmorris and others - How are you doing with your PMR? Are you still on prednisone and tapering down or have you been able to taper off and keep your PMR under control?

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Replies to "I haven't provided an update on my polymyalgia rheumatica (PMR) for awhile so thought I would..."

I came to this site because I have no support whatsoever while dealing with Polymyalgia. Other than what I was told on the Mayo Clinic site, and taking the Prednisone prescribed, I have wondered if I am the only one out there. Reading a few of the comments here, I already know many people are dealing with PR. I was told to go on the AIP protocol diet, which is very restrictive. I tried it, but could not find half the foods it suggested that I eat. Now I read that the Mediterranean Diet is the best for people with auto-immune diseases. I know that tomatoes and potatoes can send me into pain. So now it is the Mediterranean Diet with restrictions. I have come down from 40 mg of Prednisone to 6 mg in 15 months, with occasional flare-ups. As I start this 6mg schedule for the next 6 weeks, I am praying that all will go well. I will keep checking this site for encouragement.

In reply to @johnbishop. Hi there John and all, in answer to your question - I managed to get off prednisone but the last 1mg took me quite a while. I am not pain free, still very stiff if I sit for too long and have days when my body aches but it is managable. Blood test do not show any increase in inflammation on my last test 4 months ago so fingers crossed the remission will last. In New Zealand we do not have the vaccine available for everyday people, the frontline border staff and others that are in contact with overseas people are being vaccinated first. I have just been informed that the flu vaccine is available for this year but no update on the Covid one.
We are blessed in New Zealand in that Covid is under control and we can freely move within our country unlike the majority of other countries. I wish everyone good health for today and the coming months, lets hope that Covid will eventually be under control and we can get back to our new normal, whatever that may be.