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Ehlers Danlos Syndrome - Who is the best doctor to see?

Bones, Joints & Muscles | Last Active: Jun 14, 2023 | Replies (44)
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@amandajro

@sallysunshine I am sorry to hear that you haven't been happy with your visit. I am wondering if you've brought up your concerns with your care team and, if so, what they shared with you.

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Replies to "@sallysunshine I am sorry to hear that you haven't been happy with your visit. I am..."
sallysunshine | @sallysunshine | Apr 6, 2021

My internal medicine doctor realizes that the out of range issues on the tests are very serious. It is amazing to me that a cardiologist and a neurologist are ignorant of the serious kinds of medical issues which cause this to happen. I'm lucky I have a U of MN cardiologist who is a nationally recognized expert. I have found a neurologist in the cities who is also very good... some Mayo doctors are not so good.

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