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Almost pure blood and blood clots in urine

Kidney & Bladder | Last Active: May 15 9:54am | Replies (61)

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@so1frustrated

Thank you for checking up. I am not good at navigating sites such as this but I do receive email notices from this site that I go into, i.e. this post from you. Since Good Friday my urine has returned to normal....normal color, very little bubbles in urine only periodically, and no pain in side or back. On March 29 my urologist did agree to give me a prophylactic nitrofurantoin mono 100 mg prescription to take nightly to keep infection at bay although he said it was not infection because it did not culture. I still believe this was infection. I am going to give it another week then stop nitro.mono and see what happens. He wants to do a repeat cystoscope May 11 and has ordered a CT urogram (waiting to hear from hospital for schedule) even though CT scan (without contrast) and subsequent ultra sound showed nothing abnormal, as did his first cystoscopy. I am debating whether to undergo all this extra testing if urine continues to be "normal". I have no symptoms of bladder cancer, etc.

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Replies to "Thank you for checking up. I am not good at navigating sites such as this but..."

I am happy that you are taking a positive attitude to all of this. And at the same time I am sharing your frustration at the unknowing. I want to commend you for your commitment to advocating for yourself and for working in communicating with your doctors.

I hope and I pray that the doctors can provide you with the information and the support for whatever you decide about any extra testing. If I or a loved one were in your situation, I would want to know: Is there a recommended time frame to do the tests to get the possible information? What kind of information would the tests provide? And what would be the available treatment options for a possible diagnosis? And my 'all time favorite' question is: What would you (doctor) say to your son if he were in my place?
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You should get an email notification for this message because I am sending it as a REPLY to your post.
I am going to send a 2nd post to you about how the New changes on Connect.