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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
Glad to hear your ok katherine and happy thanksgiving to all. I will let you know as soon as I get the result of my culture test. I hope that the result is negative since I no longer want to take antibiotics since Im afraid of the side effects. As of now I still have excessive mucus usually early morning.Whenever I felt that I have excessive phleghm I go to the bathroom and expel the phlegm and I never had difficulty doing this it comes out easily and after doing this usually I dont cough the whole day. Im soo happy to find this forum I am a filipina and looks like no one here knows NTM. I did through researh about the disease so I can explain it to my friends and relatives. Im glad despite this illness im able to function normally so im still gratefull. MY HUGS AND KISSES TO ALL
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Hello imee! About the morning mucus .. BE SURE to do a GOOD job of coughing it up! Ask your doctor about an inhaler if you have ANY issues with bronchial tubes or breathing. Personally twice a day I take 2 puffs each of: Qvar and Atrovent. There are MANY inhalers .. it is just that those two do not trigger migraines for me.
For me .. 1st thing in the morning I use both inhalers. That ALWAYS makes me cough BIG TIME. GREAT as far as I am concerned. WHY? Because I call that two times a day (after using the inhalers) .. my "Lung Hygiene"! WHY? Because that mucus is a breeding ground for more mycobacterium to grow. The more you cough it up the better .. so cough as hard as you can and get up as much as you can .. consider it a positive thing!
Don't be afraid of the side effects .. consider the antibiotics as your friend .. killing off those critters .. the mycobacterium! Remember positive thinking helps heal your body!
Because of being Filipina and not feeling people are not knowledgeable about NTM .. that means YOU must do your 'Due Diligence" and educate YOURSELF to the best of your abilities! I strongly suggest that as you have time you read over:
an article I just recently happened upon .. REALLY interesting .. lots of data that I WISH I'd had available when I was first diagnosed. It was meant for doctors .. so is VERY detailed so don't let it scare you off .. but if I was you I would print it off and keep it handy as a reference as you are dealing with your situation. I have put the link below:
GOOD INFO http://nordphysicianguides.org/wp-content/uploads/2015/10/NORD_Physician%E2%80%99s-Guide-to-NTM.pdf
and
GOOD INFO: http://maclungdisease.org/frequently-asked-questions
Imee, SO glad you have such a great attitude and great spirit .. that will take you a long way on this journey of our disease! Just let us know how that culture comes out .. but if not what you want .. remember "Put your energy into what you can control .. and let go of what you CAN'T control". Just keep trucking along like you are doing .. keep positive .. keep happy .. stay grateful! Sending you a Hug! Katherine