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How do you gain weight with Crohn's Disease?
Digestive Health | Last Active: Jun 20, 2022 | Replies (29)Comment receiving replies
I was diagnosed with Crohn's disease in February, 2020. I have had stomach issues for approximately 30 years. Before coming to Mayo and seeing my Gastro in the city I live. I was treated by a doctor here and started out taking Budesonide for 90 days and it calmed my inflammation and made a big difference in how I felt. I was actually able to function and eat on a daily basis. After a few weeks of being off the Budesonide my symptoms returned. I started on Humira Injections for 3 months. Unfortunately, I got Drug Induced Lupus from being on the Humira so I had to stop taking it. I decided to see a doctor at Mayo. I love my doctors and the care I have gotten at Mayo. We discovered through a camera pill swallow that my Crohn's went into remission from taking the Humira. Since I am in remission, I am not taking any meds for the Crohn's. I have progressively started having more flare-ups closer together. They are debilitating. I have a prescription to take to help with my stomach pain during flare-ups. I am wondering if anyone sees a Nutritionist to help with managing flare-ups. I understand that everyone is different as far as food sensitivity, but would like to know if seeing a Nutritionist at Mayo has helped anyone. During a flare-up I will lose several pounds from not being able to eat. I am a patient at The Mayo in Rochester, and travel from another state for my care.
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Hello cah22.
I've had Crohn's since 1984 and my peak was in my 20s and 30s. I'd lose weight during active cycles and the doctors treated me with Prednisone and then I would gain 30 lbs. Back then we didn't have biologics like Humira. During an active cycle I go on a bland diet (chicken broth, mashed potatoes, jello, white bread, cheese, tuna sandwiches, etc. and take Metamucil). Keep a journal of what you eat and drink. Learn not to eat foods that are triggers; especially spicy food. For example, I haven't had broccoli since 1984, but I can eat cooked carrots and green beans. Stress is also a trigger. In my first marriage of 13 years, I was psychologically abused and never went into remission. I divorced and later on remarried. My second marriage was wonderful and I went into remission for over 20 years. Even after my husband passed (last year), I have remained symptom free; which surprised me. I hope that remission will be around the corner for you and that you have someone in your life that will support you through this. I truly believe my second husband made a big impact on my recovery.