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Anyone out there diagnosed with Pudendal Neuralgia?

Chronic Pain | Last Active: Oct 14 2:50pm | Replies (200)

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@erikas

@mmoss I'm assuming that you are having this issue and I'm sorry to hear that.

I moved this question to an existing discussion so you could connect with members like @1mepnurse @deneenm & @glenbard

Here are three related discussions I referenced earlier but they seem pertinent to you now.
– Postherpetic Neuralgia (Shingles) nerve damage https://connect.mayoclinic.org/discussion/postherpetic-neuralgia-shingles-nerve-damage-around-eye-eyebrow-forehead-scalp-8/
– Trigeminal Neuralgia* https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/
– Has anyone here had or know about Pudendal Nerve Entrapment? https://connect.mayoclinic.org/discussion/has-anyone-here-had-or-know-about-pudendal-nerve-entrapment/

May I ask what kind of a provider you have seen already?

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Replies to "@mmoss I'm assuming that you are having this issue and I'm sorry to hear that. I..."

Pelvic Floor Therapy helps some.
My pain Dr injected my Pudendal nerve twice, but NOTHING changed, so it's apparently some other unknown nerve. God love & help all others with these symptoms...Gabapentin helps SOME, but sadly, gaining weight.
Upper back thighs have burning ( like shingles)...some times worse than others.
We sure need RESEARCH for answers ! Praying.