One must realize that each person has a different shape and curvature within their body parts and that can add to the extent of the pain that is experienced. Any which way it is looked at it is outdated and dangerous. Until people can realize that with an open mind discussing this subject can be vey mentally hurtful.

@sofrustrated You are so correct. Our medical system is so frustrating. My son went for a lipid panel today, drove 60 miles, only to be told, just as the tech started to put the spigot needle in his arm that he was supposed to be fasting for 12-15 hours before the draw. The docs could have given him notice at least 12 hours prior. Truth is, you are your own best doctor, anyway. The folks in the white coats and Mercedes only look at one issue at a time, because that is the Medicare rule. I have about 350 CLINICALLY DOCUMENTED symptoms and signs of several dozen deleterious syndromes and genes. My Amyloidosis (Gelsolin) has about 200 of its own set. So get yourself a good whole genome (your whole package of genes and syndromes) clinical grade analysis, spend some time talking it over with a top geneticist, and THEN decide what to focus on. I have a bunch of syndromes which are quite serious. I think about 25 or so genes/syndromes referring to cardiomyopathy (cardiomegaly, long QRT, Arrhythmia, etc.), and several about Gelsolin Amyloidosis and Fukatin Limb Girdle Muscular Dystrophy, and some lesser damaging DNA issues such as encephalopathy, cancers, nerves. But the stuff about loss of hair and cutis laxa (sagging skin) and wide thumbs and cracking teeth and brittle finger and toe nails, I try not to worry about. Ignorance is sometimes a good practice.

Thank you for checking up. I am not good at navigating sites such as this but I do receive email notices from this site that I go into, i.e. this post from you. Since Good Friday my urine has returned to normal....normal color, very little bubbles in urine only periodically, and no pain in side or back. On March 29 my urologist did agree to give me a prophylactic nitrofurantoin mono 100 mg prescription to take nightly to keep infection at bay although he said it was not infection because it did not culture. I still believe this was infection. I am going to give it another week then stop nitro.mono and see what happens. He wants to do a repeat cystoscope May 11 and has ordered a CT urogram (waiting to hear from hospital for schedule) even though CT scan (without contrast) and subsequent ultra sound showed nothing abnormal, as did his first cystoscopy. I am debating whether to undergo all this extra testing if urine continues to be "normal". I have no symptoms of bladder cancer, etc.