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CIDP and the Covid Vaccine

Autoimmune Diseases | Last Active: Jul 21, 2023 | Replies (38)
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@gshore715

I have cidp. For 10 years it got progressively worse until I could not even button my shirt. I have been receiving immunoglobulin for almost a year and am 71. My doctor has advised me to wait on the vaccine because he is worried it may reverse my progress with my treatment. I want to travel again and live normally so I am really torn as to what I should do.

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Replies to "I have cidp. For 10 years it got progressively worse until I could not even button..."
John, Volunteer Mentor | @johnbishop | Apr 2, 2021

Hello @gshore715, Welcome to Mayo Clinic Connect. I can certainly understand how you feel, especially after being cooped up this past year with COVID. I think if I were in your shoes, I would be grudgingly take my doctors advice. I would not like taking the vaccine and then get progressively worse while I'm traveling away from home.

Are you able to do some travel closer to home?

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raphyboi | @raphyboi | Dec 18, 2022

In my experience, CIDP since 1996 , the Phizer vaccine put me in wheelchair until it wore off 6 months later.

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