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@jillnc

Just wanted to share my good news and that is after 4months of the 3 antibotics my bronchcospy and sputum cultures came back clear for MAC. I found out recently that I did not have the cluster kind, so I had one of the better ones to have. Good news 12 more months (as long as cultures stay clear which I'll have to be tested for every 2 months for a year. Bad news is that my RA dr is wheening me off predisone and I developed a rash. Tool me off the E and the R for a week. Started the E first and the rash was back. Stopped it again let it clear and have taken the R now two days not noticing a rash yet. ID Dr is sending me to an allergy dr to try and desensitize me to the E meds. We'll see what they say. I still have high fevers and night sweats sometimes and my voice is not normal as well so I asked my reg dr to recommend me to Mayo, which one of their Pulmonologist is going to see me. ID dept didn't want to see me as they felt my course of treatme t was same as they would do (is how it was explained to me). I guess my Pulmonologist here thinks I might have interstitial lung disease, but I haven't heard that from him heard it from my ID dr, so we'll see what Dr at mayo thinks. Might even go for third opinion if they all recommend an open lung biopsy as I'm not too excited about having that done. But excited my cultures are clear and there, so far, is light at the end of my tunnel.

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Replies to "Just wanted to share my good news and that is after 4months of the 3 antibotics..."

Jill, this is just WONDERFUL news! SO happy for you!

I’m so glad you ae seeing an Allergist for the reactions .. it was a really good allergy specialist who really explained some things to me that no one ever had before.

Re: your voice .. check out my post to David re a voice pathologist I saw .. don’t know if it may or may not have any relevance in your voice situation .. but it helped me.

REALLY glad you are getting referred to a Mayo Pulmonologist .. they all work as a team so you will be getting a LOT of great advice from a LOT of pretty smart people! Hopefully they will get to the bottom of things for you. Whatever they recommend .. be it a lung biopsy or whatever .. frankly I really trust those people. Mayo Clinic is ranked #1 in the nation .. can’t get better than that!

Jill, I just LOVE your positive attitude of seeing the bright side of this .. and dealing with whatever comes in the future with Mayo .. keep it up and you will do just fine! Also, make SURE you keep us posted .. we are here for you come what may! Hugs and congrats to you! Katherine