Hi Katherine...good to have you "back" with us!! I am hanging in as the saying goes.Visiting daughter in Denver and thus able to attend the all day workshop at National Jewish for clients of NTM. Amazing for sure and it was video taped and will be posted on line in a few weeks. The microbiologist really stressed cleaning our pulmonary equipment frequently...am thinking of your new item you mentioned.

I am in process to being seen there.at NJ..they have the requested notes CDs etc the liaison who accumulates them emailed this morning they have what they need so
Matter of their team reviewing and making an appt for me to be seen. I checked at workshop with one of the Drs...she said probably mid October...meanwhile she said to keep appt with local Infectious Disease Dr.
As irony would have it..I discovered last nite via an automatic email that somehow my appt on October 4 with local ID Dr was changed to sept 21 while we r still in Denver....I sent a quasi nasty note to the doctors electronic mail box and this
Morning got an e mail response that I had been called to reschedule the oct 4 appt since Dr would be out of town on October 4th. Hence the appt on sept 21?
My options were to take a chance on the 4th that she would be back or an appt on October 11
So I called and spoke to the (overworked) receptionist "NOBODY called me" I started her Monday morning with. We went around in circles with me in frustration saying "hey look...I just spent a day at a workshop learning what a menace the organism that is in my lung is...and it was discovered in July so I am anxious to be seen.
We left it that she would ask the nurses to see if I could get in next week and they would get back to me. I am not holding my breath.
Welcome to one of many challenges to NTM...the medical systems..thanks for letting me ventilate. And welcome back again.