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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
Kay Strand....I will try...before l leave...take items/issues you posted and see if there might be answers at the sept 17 workshop...list some more as you think of them....and anyone else.
I also am starting to think that more people have MAC but typical cultures...as was mine are not brewed correctly or long enough to show the MAC....so indeed there is more out there then is diagnosed.
terri
Replies to "Kay Strand....I will try...before l leave...take items/issues you posted and see if there might be answers..."
@tdrell luv the pic of you and your bestfriend!
Here's the latest research being done on inhaled meds science:<br>https://www.cosuspensiontechnology.com/distribution.html?source=PT3H44356<br><br>&WT.mc_id=PT3H44356&umedium=Paid%2520Search&uadpub=Google&ucampaign=Technolo<br>gy%2520Features&ucreative=Distribution&uplace=pulmonary%2520drug%2520deliver<br>y - much difficulty getting certain meds to the right targets in the lungs<br>with old methods.this is meant to address that problem.<br><br>Also, an abstract reviewing research done on inhaled antibiotics.<br>http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4028738/ <br><br>Stuck on the inhaled treatment for only those who have failed standard<br>treatment.need one that supplants standard treatment.<br><br> <br><br>Terri
Terri, what a pretty "baby" you have! So glad you are going to this workshop for all of us .. what a great help to all of us! Knowledge is power!
Personally I have always thought that so many health issues both physical and mental are someday going to be linked with a genetic and then something that happens in our life be it a virus .. infection .. environmental or whatever. I LOVE C-Span books on Saturday and Sunday here in our area .. love listening to it all week end .. authors being interviewed about their books. Recently I listened as I went about my day to an author who discussed ONE area of research that is currently being researched .. that an INFECTION triggers various mental illnesses such as Schizophrenia and Bi Polar. Absolutely fascinating! Really made me think about our disease. I had TERRIBLE pneumonia in 2003 .. 5 rounds of antibiotics .. 3 of steroids .. really sick for three month. This was BEFORE I understood about our "Due Diligence" and all that we talk about here about taking good care of ourselves and getting a second opinion!
I have wondered .. DID this have anything to do with getting MAC/MAI .. trigger some genetic thing in me??
I know that I have had the "spit" test 23and Me that showed I have genetic lung issues. Hmmm?! Time will tell! So Terri, thank you for being our stand in .. come back to us with your good notes! Katherine
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thx @tdrell for attending this on our behalves, we do need new drugs, inhaled dugs or even a different way of thinking like inhaling good bacteria which control the MAC bugs, so they dont overgrow, this is possible and is being tested but we need it hurried up with more money, this could be an easy answer.