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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Heather
Yes, I think we can be supportive to each other.
I'm under. Kay Strand. Eden Praire Minnesota. Let me know if that works. Just friend me. That will be fun to see each other away from the stupid MAC.
I feel much better tonight. Took the start of azithromycin tonight and my Ethanutol - I think it's the Rifamtin that kicks my butt, but hope nor for long. Mayo has you build up to full dose, I would have been in really bad shape I think. The doc emailed me that it will take a few weeks for my body to adjust to all the meds. This morning I felt awful. 2 hours sleep, shaky and nauseated. I didn't eat much but I think I'm back on the horse. There will be bad days I need to get through. My poor partner Jeff, I feel like I'm wearing him out. It's so good I have you and one other similar woman to talk to. It really helps!
I have 1 cavity in upper right lung, they are aggressive with that area. I had pneumonia last Dec and they gave me a cat scan for a spot in my xray. When it was still there in June I had a bronchoscopy and lavage and they found MAC. They did test for tons of fungus, all negative for all except MAC. What a shocker to get a weird disease, some days I'm still down, but my life is good otherwise so I'm going to really work to get past this with whatever the Mayo wants to do.
Anyway, we watched a bit of Olympics and a movie and I'm going to try to do Pilates tomorrow. Playing it by ear.
Enjoy your evening and I'll watch for you to Facebook me. Take care, we can help each other which is good!!
Kay
Replies to "Heather Yes, I think we can be supportive to each other. I'm under. Kay Strand. Eden..."
I thought I was sending a private message, thanks for fixing!
Kay, when you respond to a message by email, it is posted to the forum and to all members. This is the strength of community - sharing knowledge of many. You can also click view to see all the messages.
COLLENN, I AM CONECTING YOU JUST TO UPDATE MY SONS PROBLEM HE WENT WITH HIA<br>PRIMARY DR. IN PORTLAND OREGON AND HE AND AN UROLOGIST DECIDED FOR HIM TO<br>WAIT 4 WEEKS TO HAVE HIS PSA. WE ARE VERY WORRIED<br>
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