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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Hi Kay, I was on the big 3, 3 days a week for 18 months, but from Monday am going onto them daily also, I too have a cavitary, had a few morecavities but they have gone and only left one now. I am hoping because the dose for daily is less at once it will not have too much of an effect, Bring it on!( I think haha).
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Heather
My dosage is 1200 Ethambutol (3 pills) 600 Rifampin(2 pills) and 125 azthromycin (1 pill) daily. I was to take them all at dinner w exception of Rifampin 2 hours after. Due to sleep problems the last 2 nights, Rifampim in AM now 2 hours after breakfast.
I was doing fine but last night could not sleep and got really nauseated. Called the doc and she said to take them differently. She said it's a huge load of meds and to stick with it and side effects will subside.
How much will you be taking? That is so great your other cavities are gone with one left. I have one big cavity. Stories like yours make me hopeful.
Did you have side effects and how long do they last? It seems some people take them easily and others have a rougher time. I never get nausea so this is new to me. It goes away intermittently and I eat but at this rate I will lose weight I really don't want to lose. All my life I ate healthy to stay at a good BMI. Now struggling to hold weight on! Crazy.
I'm starting to do favorites and trying to figure out this site. It helps to hear stories like yours. And your attitude is great.
Kay