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@Paula_MAC2007

Hello everyone,

For those newly diagnosed or others just plain scared about going on the meds, just remember two things: (1) without these meds, many of us would be in extremely serious trouble, and (2) if you find the meds making you so ill, you can always go off them — or perhaps there is an anti-nausea med you can take with them. Hang in there . . . it does get better!! But you DO need to take care of yourself. Sleep and exercise (to get your lungs working better) are critical. Even a brisk 20 minute walk every day will help. Much good advice on this site. Glad we’re here to help each other.

Paula

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Replies to "Hello everyone, For those newly diagnosed or others just plain scared about going on the meds,..."

What 5 antibiotics are you on? For 1 year I was on 3 meds, didn’t help,
following year put on ,clarithromyacin, ehtambutol and rifabutin. That
didn’t do it. Other problems are surfacing and so I was taken off those 3
meds for now. My skin is bronze in color, everyone thinks I am “tanning”!
We have to figure what is causing that. Also have extremely dry flaky
skin and am tired and having difficulty gaining weight.
I have the bronchietatsis too. My problem, I don’t walk due to problem
feet. Wish you well.

My pharmacy dr said one of the antibiotics causes your sweat, tears, etc to turn orange. That could be the bronze skin symptom.

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