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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)
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@Paula_MAC2007

Hello everyone,

For those newly diagnosed or others just plain scared about going on the meds, just remember two things: (1) without these meds, many of us would be in extremely serious trouble, and (2) if you find the meds making you so ill, you can always go off them -- or perhaps there is an anti-nausea med you can take with them. Hang in there . . . it does get better!! But you DO need to take care of yourself. Sleep and exercise (to get your lungs working better) are critical. Even a brisk 20 minute walk every day will help. Much good advice on this site. Glad we're here to help each other.

Paula

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Replies to "Hello everyone, For those newly diagnosed or others just plain scared about going on the meds,..."
e345l | @e345l | Apr 25, 2016

What 5 antibiotics are you on? For 1 year I was on 3 meds, didn't help,<br />
following year put on ,clarithromyacin, ehtambutol and rifabutin. That<br />
didn't do it. Other problems are surfacing and so I was taken off those 3<br />
meds for now. My skin is bronze in color, everyone thinks I am "tanning"!<br />
We have to figure what is causing that. Also have extremely dry flaky<br />
skin and am tired and having difficulty gaining weight.<br />
I have the bronchietatsis too. My problem, I don't walk due to problem<br />
feet. Wish you well.<br />
<br />

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barbjh | @barbjh | Apr 25, 2016

My pharmacy dr said one of the antibiotics causes your sweat, tears, etc to turn orange. That could be the bronze skin symptom.<br />
<br />

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