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@Paula_MAC2007

@e345I . . . I'm not in the study and this is the first I've heard about it. I live in Wisconsin, about 6 hours from Mayo Clinic. But I go to an excellent teaching hospital here and they could easily do the monthly follow-up for Mayo. I'd REALLY LIKE TO GET IN A STUDY with lots of people with a MAC or MAI diagnosis, to see if THERE ARE ANY COMMON VARIABLES THAT MAY PROVIDE A 'HOW' the majority of us got this.

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Replies to "@e345I . . . I'm not in the study and this is the first I've heard..."

When I first went to Mayo, I was told of the study. I had the disease for<br />
several years before I got to the right doctor. My understanding was that<br />
there were 3 different studies, and you didn't know which one you would be<br />
doing. One was something with a neubulizer, placebo pills and the real<br />
pills. Not even the doctor would know which test you were taking. Since we<br />
were 5 hours away and it was difficult during the winter months, we weren't<br />
asked to participate. I was very hesitant to do it.<br />
<br />
In another post I mentioned the article I read about that fair skinned<br />
women in their early 60's who lived on a farm around farm animals were most<br />
likely to develop MAC. I lived on a farm since 1961. Worked with cattle,<br />
hogs, sheep, and chickens and did a lot of gardening. I think this is how<br />
I got it. Had the chronic cough for years. More problems have developed.<br />
I have lost a lot of weight, no appetite, tired all the time and my skin<br />
turned bronze in color for a year now. Ironic, my twin sister who lives<br />
in a city and smokes, never got the disease. I never smoked! Thanks for<br />
listening.<br />