Connect
← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
Discussion
(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
Thank you so much for your help Katherine, I have suffered hayfever allergies all my life,but as soon as I read “reactive airway disease” it rung many bells with me, I cough, get tight chested and cant expell all my breath out, when the temperature droops by 10 deg, (esp around 2am) and in cold air when walking or exercising, and when when emotionally stressed, and if I suddenly run, I am going to my doc to discuss this, I have had this all my life, thank you so much! for the coughing early morn in bed I breathe under the sheet. I also suffered alot from nasal drip and found cutting back on dairy has helped alot. It would be interesting to see how many others on this forum suffer from these.
I thought about the boiling water situation, and realised that it is creating steam which is not good for me so may get a pressure cooker and take it out side to let steam out but bacteria should be dead by then anyway, I read about it under taking precautions to prevent reinfection with MAC/MI, it was in the National Lung Institue pages http://rarediseases.org/rare-diseases/nontuberculous-mycobacterial-lung-disease/ then investigated further they say at 55 deg c it takes 20 mins to kill them I think. As we are prone to getting this infection I will try to avoid it where I can(if I can clear it in the first place), they also say to bathe instead of showering, so I do with the window open, and wear a mask when gardening and bathing in warm water.
Replies to "Thank you so much for your help Katherine, I have suffered hayfever allergies all my life,but..."
Connect
I don't know if this is going to help anyone BUT .. I don't have a clue WHY it help my coughing .. if it is the Reactive Airway Disease .. the Bronchiectasis or just what .. I just know it helps my coughing so I don't ask why .. I just have an "attitude of gratitude"!
Years ago I purchased this item so that when I traveled it would help keep my immediate surrounding air "clean" while flying because I always seemed to get a cold when flying because of the recirculated air. Of course that has improved over the years .. BUT I purchased this item and always wore it around my neck while flying. Air Supply Mini-Mate Personal Ionic Air Purifier $51.38
Virus and Bacteria incinerated by corona discharge
• 120 trillion ions per/sec. output. Ozone output .028 ppm
• Destroys odors, chemical contaminants and dust
Then after I got all these lung issues .. I accidentally found out while flying that this little unit also helped my coughing! For whatever reason .. I am VERY affected by "close spaces" .. automobiles .. theatres .. tight areas in restaurants etc. I will immediately start coughing. It is SO embarrassing. People are so kind .. offering lozenges .. etc. I for years have immediately mentioned that I "have a lung issue .. that I do not have the flu .. that what I have is not contagious". I absolutely do NOT want people worried that I am going to get them sick! But if I start this little purifier quickly enough .. usually the coughing will subside! Recently I have even gotten one to put by my bedside .. because for whatever reason I cough a LOT when I first go to bed. Amazingly I have found it has even helped at bed time .. go figure!
As I said .. I don't have a clue why .. what or where. It just works for me. Going to pass it one in case it might work for someone else!