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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)
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@jamesoz

Just a bit of news from me in Australia. I have started on a three day a week walking regime, walking around 7 1/2 miles per outing. I have built up to walking at a reasonably fast rate, about 10 mph in US terms or 6.6 kph for the metrics. I am certainly feeling better for it. I wear a Fitbit watch which records heart rate, speed, distance etc so I can keep a record of my progress. I am now using a CPAP machine, as I have been recently diagnosed with sleep apnea. It takes some getting used to but I am starting to feel more energized during the day. Life is getting better, and my MAC symptoms are getting less.

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Replies to "Just a bit of news from me in Australia. I have started on a three day..."
EHLINY | @ehliny | Dec 2, 2015

I have found that physical activity is vitally important for improving quality of life in my lung-compromised situation. Anything that gets me breathing more vigorously seems to "clean out" my lungs, and I feel better and have more energy for hours afterward. I'm surprised the medical profession doesn't promote exercise more - it's clearly one of the best "medicines"! Thanks for your post - inspiring!<br />
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Katherine, Alumni Mentor | @katemn | Dec 2, 2015

I am REALLY impressed with your 7.5 miles per outing! WOW! I was one of the original participant (still am involved in) the Women's Health Initiative that has charted women's health over the years .. am very proud of trying to help future generations. They now have a new research initiative "WHISH" that involves researching around the amount of exercise done versus health. I agreed to be a part of that also.

Seeing your post .. it is helping me MAYBE attempt to increase my activity! I have been doing Nordic Track (a cross country ski machine) for nearly 40 years .. stopping only for about 3 years when my back was so painful from the MAI/MAC coughing. Prior to stopping .. exercise was like brushing my teeth .. just part of my life. It was amazing how hard it was to get "back in the saddle"! SO easy to put it off and not prioritize it. So reading your post .. I am REALLY going to try to harder! If you can do 7.5 miles .. I can get my fanny in gear! Thanks for your post!

p.s. my husband uses a sleep machine .. he has had to try SEVERAL different masks to really get the right fit that will allow him to use the machine all night. If your current one doesn't feel quite right .. try another .. plus my husband has discovered they wear out .. need to be replaced periodically as the "fit" kind of gets poor. This did not happen however for many months.

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