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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: 4 hours ago | Replies (9354)Comment receiving replies
Katherine, thanks for the reply. My depression/anxiety, diagnosed as Cyclothymia (Cyclothymic Disorder), is something I have had nearly all my adult life. It stems from losing my brother when he was only 16 years old, I was only nearly 19 years old myself, then my Grandfather and father in a short number of years then the breakdown of my first marriage. I have no contact with my adult children or any grandchild, only my fabulous current wife of 28 years, and some friends to support me in my illness. And, that is more than many I suppose. I am starting to do some volunteer work, as I am a early retiree, and I try to keep my mind busy. It is too easy to lead a very insular life, and miss out on the fun of actually living. I have been told that MAC may be my cross to bear for the rest of my life, and that is a scary thought at times. However, life is there to be lived. It may not be quite what I thought it would be, but it is all I have.
James
Replies to "Katherine, thanks for the reply. My depression/anxiety, diagnosed as Cyclothymia (Cyclothymic Disorder), is something I have..."
Good for you James! It sounds like you do just like I do .. try to see the glass as half full .. even if it might be 1/3 full! I'm so happy you are volunteering .. it helps to be SO aware that we are indeed SO much better off than so many other people .. having an attitude of gratitude. Like you I have a good spouse .. we support each other .. indeed we are blessed. I would NOT want to be walking this journey alone .. and we need to remember that MANY are .. another gratitude! My daughter told me about googling "MeetUp". It is a WHOLE BUNCH of various groups of people all over the world (they were living in Hong Kong at the time) that allows you to find all kinds of ways to not only volunteer but also to socialize .. NOT focus on ourselves nor our bodies. I did what she suggested and have found it fascinating! My special interest is exploring my spirituality .. but have also joined groups for lunch/dinner/theatre/ballet/volunteer .. you name it .. a GREAT organization .. AND a lot of fun to explore! Give it a try!
Thank you Katherine for the heads up on the lumbar / S1 support belt. It is in my Amazon Cart now! 🙂 I will also be looking for a lumbar support for my computer chairs for home and at work on Post, as I spend too much time in front on computers >_< on a daily basis.
And James I am happy to hear that you have a 'Rock' and some friends to support you. What kind of Volunteer work do you enjoy? Having experience with persons who are afflicted with Cyclothymia, I know that two that are currently taking nothing but I believe it is 'Gaba' or/& a Theanine combo. One person with whom I have had contact with for years, has told me that the Theanine brand from Natrol available through the Vitamin Shoppe on-line is the BEST,
Best wishes to ALL,
With Love,
Melissa
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James<br />
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I have been diagnosed with MAC the TB one and pleuricy in March 2015, I'm take my antibiotics at night to get relieve from the side effects. I am tired the whole time. Some days are better than others. I stopped taking my anti depression meds. Good luck, we have been put on this journey for a reason. <br />
Maryke <br />
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