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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Here I am johnlk. I have just started on this site. I am an 86 yr old white male WASP. Well not P i am LDS since 1988.
Have had MAC the not so bad kind with nodules in the lower portion of lungs for past 2 @ half years. Finally diagnosed for sure this past Sep. Up till 2 years ago I have been very healthy for my age and active. Now not up to doing much and need lots of rest. I had severe phemonia 4 years ago and probably lowered my imunity since then. I was a career pilot in the RCAF in Canada for 21 years and have PTSD so cosiquently have a lot of disturbed sleep that doesnt help one to be rested.
Also had a lot of surgery in past 3 years. With atrial fibulation, had pace maker and surgery to open up caritoid artery to clean out plaqe blockage. Surgery on face for malinoma. Have elected to just be monitored and not take drugs for the MAC. To live as healthy as possible and try to build up my imunity. After all at age 86 I will probably die of some other cause than the MAC or not live until the end of a drug treatment plan. I dont need any more day to day living discomforts than I am already loaded
down with. At present half a flight of stairs is enough for me without a rest.
I would be particularly interested in hearing how it is going for other patients who are not on a drug plan for MAC but are trying to let their own body fight the MAC without drugs. I already take 4 RX for my other conditions.
Just now I dont have the stamina to do much exercise just get through the day.
Best wishes to all. John
Replies to "Here I am johnlk. I have just started on this site. I am an 86 yr..."
Hi Katemn. I have been on the med's since 2010 and taking a break from them for a few months. I too have gone into bronchiectasis and COPD and my white count and platelets very low. Going to see if they raise up without taking the drugs. I am interested in the homeopathic remedy. Started out with the MAC only. <br />
<br />
Julie <br />
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>
THANKS FOR THE INPUT kATEMAN<br />
<br />
Yes nI am trying to hook up with someone here in British Columbia Canada,<br />
Perhaps at Kamloops BC for the non drug treatment.<br />
So far no luck but the day is young.<br />
<br />
John<br />
Ahoy John! š I have been off of the antibiotics since July 2015 after a six months. I still test POS for AFB sputum and still have a productive cough. (My ribs hurt from coughing) I still (in my opinion) have ineffectual physicians overseeing my care. I have developed a consequential fungal infection that is proven to be quite resistant to conventional meds that the āladiesā usually take ;( as a result of the antibioticsā¦
Nonethelessā¦ I return to my ID doc and pulmonary doc in a couple of week to discuss my alleged normal CT scan with the ever present āreticulondular, interstitial, pleuroparenchymal opacities in both lung apicesā which they regard as ānormalā.
P.S. I regard the LDS as a definite P š in the broader sense of it all.
Best wishes and may the FORCE be with you!
Melissa
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Hello John .. WELCOME!
If you choose to not do the antibiotics .. the other thing I do and have found very effective is that I have found through a bit of research a Homeopathic Practitioner who is also a practicing Pharmacist (for 17 years and still works as a pharmacist for the health insurance!). Despite going to the VERY BEST doctor a Mayo Clinic for my care .. I have found the Homeopathic remedies given to me by my Practitioner to be the most helpful with my horrific coughing that just absolutely racks my body. Over the course of the past 4-5 years she has changed that remedy several times and it has made a definite difference in my coughing and overall well being.
As I told my Doctor at Mayo Clinic .. I don't understand electricity either but when I turn on the light switch .. the light turns on .. I don't care that I don't understand Homeopathic Medicine .. I just know it WORKS! Fact is .. when we travel in Europe .. beside nearly every pharmacy .. right next door to it is a Homeopathic Pharmacy .. that is how accepted it is in other countries. All I can say is that for years it has helped me. But I also did the antibiotic routine .. but left with Bronchiectasis and this terrible coughing.