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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
It may be unrelated. I had my blood count checked the 1st 2 years and not since. It's been 6 years now. I think the blood count check was related to the illness, not the meds. You may have a reaction to the type of med you're taking. It would be interesting to see what the Dr. says. Yes, med are likely a life long thing. Hopefully, the side effects and effectiveness will improve in the future.
Replies to "It may be unrelated. I had my blood count checked the 1st 2 years and not..."
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Julia and Shelby -- my pulmonologist does my blood workup twice a year - due to concerns with the 3 meds that can cause liver or bone marrow (I think) issues. Also, when diagnosed, my vitamin D level was very low - under 4 - and he says there is some connection to this and MAC/MAI although they don't yet know what the connection is.