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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Bless you Katerine for your shared inspiration! I to back to my backwoods (LoL) infectious disease doctor in two weeks. He is a very nice doctor, but he specializes in HIV and other diseases, I believe I know more about MAC than he does. The VA lists, MAC as an 'Emerging Disease' and with that I have written my Congressman again, this time sending copies to the CDC and the NIH trying to get some pressure on the Military to send me to the Mayo Clinic to see Dr. Aksamit. In the mean time....I will continue to take shallow breaths, keep coughing this stuff up, knock my fevers and Drive On!!! 🙂
Have a blessed day all!
Best wishes
Melissa
Replies to "Bless you Katerine for your shared inspiration! I to back to my backwoods (LoL) infectious disease..."
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Melissa, I don't know if this might help you .. it might ONLY apply to MY health situation .. but it might help point your doctor in a direction of type of meds. You might also google the meds and educate yourself .. but ALSO understand all the horrific side affect do NOT happen to everyone!! These meds stabilized me with VERY few side affects .. sleep disturbance/some fatigue/time and bother of the inhaled Amikacin .. but I can't really think of much else. As far as I am concerned a small price to pay for my current better health!
My meds prescribed for me by Dr. Aksamit were daily:
Azithromycin 250mg/
Avelox 400mg/
2-Rifampin 300mg/
Amikacin 2ml-inhaled 3x week