I'll jump in with a remarkably similar tale!

I noticed a similar drop in August, after a month of what I thought was back problems or peroneal nerve damage. A trip to the orthopedist, some xrays and MRI's, and a visit to the neourologist landed me in the OR with a surgery in the L5-S1 spinal region. The foot drop was thought to be caused by nerve compression, and that the surgery would help improve what was thought to be spinal stenosis. Less than 3 mojnths later, I have lost an additional 20 lbs, and have had the "we think you have ALS" speech from 3 doctors in the past few weeks.

I can now walk (barely) with the aid of a Rollator; I have had any number of internal tests (upper GI, colonoscopy) and lab work, showing all functions normal, including thyroid, glucose, liver, kidney, and no celiac or malabsorption issues. I have lost nearly 50 lbs since Nov 2010, now tipping the scales at 155 lbs (6'0", 48 yo) - and have been told to eat whatever I want.

The fasciculations race across my torso and thighs- but not in my effected foot (interestingly).or above the neck.(thankfully). Like TOMMEL (below), my job is understanding and not physically challenging. Like DJK, I get a lot of shrugs, inconclusive diagnosis, and "There IS something going on - I'm not sure WHAT." I joke that I have a crack medical team, headed up by Scooby-Doo.

I meet with the Gehrig ALS Center at Columbia later this week, and am hoping they may be able to come up with more conclusive info and (optimistically) about how to treat it. I wonder if there is some connection between the OPs condition and my predicament........

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