Hi, this is Flor. It's so interesting to read your statements regarding Myositis in general, and I learned there are types of this condition. Never eard of IBM I think I had myositis when I was a child, 8 years old. I don't remember my mom talking about a definitive diagnosis, but poliomyelitis or else at that time. Because of the clinical symptomatoloy I had I thought it was Guillian Barret, years later, because the weakness started in my legs up my body getting to my arms. I couldn't walk neither move. I had no pain at all. However, prior to feel the muscles weakness, I had a couple of days of pain in my extremities and my walking and movement were heavy. My treatment was IV fluids with vitamins for a week or more, bedrest, cast on my legs/feet and physical therapy for almost three months, the entire time. I was discharged home walking 100%. I recovered in 2 months and a half completely. Why am I interested in knowing more about Myositis? In March 2015, all of a sudden, I experienced a rapid feeling in two muscles of my anterior aspect of my thighs like falling down, that lasted less than a second. No pain or other complaint. it was only the feeling like they lost strenght. As the days passed, I was noticing some weakness in my two thighs, anterior aspects, and some difficult to move that was increasing little by little. I went to a specialist, neurology, and blood tests, physical exam, ROM, X-ray and found nothing. So I suggested physical therapy. I did it for 3 months religiously plus the routine at home and I recovered completely. So I include physical activity, walking, bycicling, dancing, and watching myself. I was very scared this second time. Faithfully thinking positive being grateful of my recoveries. Praying for all of you. Going to a speciliazed doctor is the key!

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