Hi, this is Flor. It's so interesting to read your statements regarding Myositis in general, and I learned there are types of this condition. Never eard of IBM I think I had myositis when I was a child, 8 years old. I don't remember my mom talking about a definitive diagnosis, but poliomyelitis or else at that time. Because of the clinical symptomatoloy I had I thought it was Guillian Barret, years later, because the weakness started in my legs up my body getting to my arms. I couldn't walk neither move. I had no pain at all. However, prior to feel the muscles weakness, I had a couple of days of pain in my extremities and my walking and movement were heavy. My treatment was IV fluids with vitamins for a week or more, bedrest, cast on my legs/feet and physical therapy for almost three months, the entire time. I was discharged home walking 100%. I recovered in 2 months and a half completely. Why am I interested in knowing more about Myositis? In March 2015, all of a sudden, I experienced a rapid feeling in two muscles of my anterior aspect of my thighs like falling down, that lasted less than a second. No pain or other complaint. it was only the feeling like they lost strenght. As the days passed, I was noticing some weakness in my two thighs, anterior aspects, and some difficult to move that was increasing little by little. I went to a specialist, neurology, and blood tests, physical exam, ROM, X-ray and found nothing. So I suggested physical therapy. I did it for 3 months religiously plus the routine at home and I recovered completely. So I include physical activity, walking, bycicling, dancing, and watching myself. I was very scared this second time. Faithfully thinking positive being grateful of my recoveries. Praying for all of you. Going to a speciliazed doctor is the key!
Hello @fiore and welcome to Mayo Connect.
Your example of advocating for yourself is wonderful. Seeing the right specialists and working with physical therapists and continuing to exercise are all important ways that we can feel better.
How did you go about finding the right specialist?