My wife is doctoring through the Neuropothy Dept. at KU Med. They sent us to Mayo and got diagnosis for Cerebral Ataxia and quantified the loss but no mention of IBM (Inclusion Body Myositis). I believe her weakness, falling down and dropping things may be caused by this. Do we need to see a different department?

I was diagnosed with polymyositis in January of 1976. The worst year of my life. I had just gotten married 8 months before, at 19, and our marriage did not survive what the doctor described my future to be. I was treated with tons of prednisone, and had many side affects I don't know which was worse, the disease or the treatment. All I know was I was very weak, in pain, very thin, fatigued, and very depressed. Then got a bleeding ulcer from the drugs, and things went from that to colitis to myositis to crohns disease. After many surgeries, I now am on tpn, and now have degenerative scoloiosis ,myositis,etc. and it looks like I will have that wheelchair after all. I'm 63.. To me, loss of dreams was the symptom that hurt the most. Loss of doing things for myself . I wish you well.