← Return to RSD/CRPS

Anonymous (@anon37227499)


Brain & Nervous System | Last Active: Apr 26 8:31am | Replies (118)

Comment receiving replies

Hi my name is Melissa and I have had cprs for about 10 or 11 years and I just got diagnosed to Anne after years ago I have it in my right upper arm it goes through up to my neck into my rib cage and into my back and I'm so scared that it's spreading onto my right side because I'm trying to get a lot of nerve pain but when I was reading your texts about it get chest pains ate my chest pain started about a year ago but over the last 2-3 months I've been feeling my chest pains extremely bad and like you said you're worried it could be a heart attack I feel the same way at some point the pains in my chest are extremely bad I'm having issues with my insurance company right now so I'm trying to find a cardiologist to help but due to my insurance right now it's hard to I'm just really scared there's something wrong with my heart do you know how CRPS affects your heart and what it can do if you do could you please explain it to me I would really appreciate it as I am only 36 years old and I have a 17 year old son so I'm extremely scared about my heart issues thank you so much

Jump to this post

Replies to "Hi my name is Melissa and I have had cprs for about 10 or 11 years..."

Hi Melissa @bikerchicl . I cannot say for certain but I believe that the pains that I am getting are CRPS related, as nothing has happened to me and I have had many attacks. Although I must say they are increasing, in both length & pain. In your case, I would recommend that you do whatever you need to do to in order to find out what the pains you are getting are related to. You need your peace of mind.
In my case I really don't care if I live at this point, so if I have a heart attack & die so be it. My kids are all grown and my husband died almost three years ago now from cancer that we didn't find out about until it was too late. He died six weeks after his diagnosis! He was my caretaker before he got ill. Now I am finding it harder & harder just to perform menial tasks. I tend to fall now several times a week, including a big tumble down the stairs on Easter Weekend which I am still feeling the affects from. Frankly I am surprised that I didn't break anything, although I do think it has increased my overall pain .
I really don't know where to go from here. I need help and cannot afford to pay and the government does not provide any assistance to direct me to someone who can. I am lost and I don't think that it is even worth the effort any more. I have done the ketamine infusions, turned down for SCS surgery and am on the verge of them taking away some of my meds due to the Opiod Crisis of course!!!! I could go on and on. Honestly, the bottom line is .. my kids didn't want to help look after me so one moved to a whole other province and the other moved out without ever calling, texting or seeing me ever since! I have no purpose, my life has no meaning anymore and I have no quality of life at this point… I have been putting off going grocery shopping for three days now because I just cannot seem to push my body any more to do this task, which is often the most arduous of them all. I need to go my pain in my hands and arms is increasing due to the typing and my legs are getting worse now as well. .

Melissa, Although, it is encouraged that people discuss via the forum as that really is the way folks can share and learn from each other. I do understand that sometimes there may be things that you are not comfortable in communicating to a group of strangers (although that is often the reason people feel so free to share). I will send you a private message Melissa so you can discuss anything that you do not feel comfortable discussing with the group as a whole. Regards