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Is there anyone else out there with pure autonomic system failure?

Brain & Nervous System | Last Active: Mar 15 8:52pm | Replies (23)
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@adelaide

Interested in talking with other women who are coping with Pure Autonomic Failure (PAF). I am a retired registered nurse educator. How are others coping with problems such as the supine hypertension? Are others heat sensitive?

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Replies to "Interested in talking with other women who are coping with Pure Autonomic Failure (PAF). I am..."
kathiweaver | @kathiweaver | Mar 15 8:52pm

Hi I have PAF & am a retired RN. Saline IVs at home help me. They say we often have low circulating blood volume.
It's frustrating for sure

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