I am delighted to receive your reply. I would like to compare our disorder and learn how you are coping with it. I am 80 years old and had such a time getting any kind of diagnosis until Mayo's put the blood pressure cuff on and had me record what I was doing at the time. I won't go in to too much detail this message. Please send me your questions. Thanks

It is hard to explain my condition. When I standd up my blood pressure starts going down, get light headed, get tunnel vision and things get grey so I cannot see then twice I have blacked out. When I hit the floor it jolts me back. I am very careful to get down in a chair or on the floor with legs in air to avoid this from happening. I take Florinef and 4 salt pills a day to keep bp up. There are other effects such as dry eye, irritable explosive bowel, do not sleep well and take med for depression. I have bad days when avout all I do is remain in recliner except for bathroom breaks. I have underlying hypertension so sleep in adjustable bed withhead elevated and head of bed up on jacks. I got diagnosed in about 2003. In test at Mayo,s I did not sweat normally. Would appreciate hearing from you. Thanks

I have fainted 4 times in the last 5 years and have not been the same since my second spell. I have been dizzy everyday since my second spell 4 1/2 years ago. The cardiologist diagnosed me with neurally mediated syncope. The dizzyness has gotten better over time, but can still affect my day to day life. I am considering an appointment at the Mayo Clinic because my current doctors say there is nothing they can do to help the dizzyness.

Sorry I've been slow in responding. I have quite an extensive history of other illness. While they are serious by themselves, I could still be ambulatory and somewhat functional if it weren't for the hypotension when I stand. My BP drops up to 50 pts and my diaphragm closes and I can't breathe. Mayo diagnosed an autonomic neurological disfunction that causes my problem. I hope they are able to get more answers for you.

Ihave a lot of faith in Mayo's. They see so many more patients they may be able to offer some help. It would be worth a try. Good luck and let me know how you come out.

I have pretty much learned how to cope with my situation. I am now in an assisted living facility. I also wear 30-40 pantyhose which seem to help. My left heart valve has decided to leak now too. Are you wheelchair bound? I am ambulatory and just keep rollator with seat on it whenever I go very far so can get seated if feel it going too far down. Tke care. Tell me more. Thanks

I may have already responded. The difficulty breathing is the worst.