Chronic pain is frustrating. My docs, along w/ Mayo Clinic told me not to cut the nerves cuz you can end up in worse pain than before. Ugg, I can't image my pain getting worse. My pain is from the time I wake up to going to bed. Things that make it worse is walking, lifting, & especially sitting. Are u moving to what part of North Dakota? If so, who is your doc? I live in Bismarck ,ND.
I have trialed peripheral & spinal cord stims. Still deciding what I want to do. I am doing some PT with a female PT that works specifically w/ women who have pelvic/groin pain. I saw her before with no luck,,,but mabey this time:)
My doc is changing his course of action & looking into poss damage to my pudendal nerve vs ilioinguinal nerve. Everything I do brings me bad luck.. I am so thankful for my husband & family for their support:) I have good & bad day, but unfort. theres more bad than good but I gotta just keep on going til I find more relief. I realize that I will never be cured but I want some pain relief!!!!

Also my pain started 3 wks after an elective TOTVT bladder sling procedure w/ mesh. I did have it removed but pain is still there! Why did I ever do this in the 1st place?? Ugg, guess I can't go back, but I woud if I could!!!!! I'm praying for a miracle:)

i moved to minnesota,close to fargo. the docs im seeing are in fargo.hav appts.coming up for nerve doc so im hoping they know more here then alaska docs.my ak doc did warn me that cutting the nerves might not work,but when so much pain is involved, willing to try anything.its been a little over 2 years that i had the nerves cut and its back worse then ever. let me know if you find something that eleviates the pain and ill do the same.thankfully i also have a wonderful husband that takes care of me but its also so frustrating for him when im screaming.and on top of him working hes having to cook and clean.

Probably pudendal pain. Mine is post auto/golf cartvinteraction. Have had bestvresponse from pudenal nerve blocks. Google pudendal nerve pain and youllbfind a wealth of info. My best relief is inactivity which of course plays heck with all muscles fatigue etc. morphine best pain control. Just being referred for possible spinal cord stims but from what I read. Not good results

How long have u suffered? What are most of your symptoms? I have researched pudendal neuralgia & yes I have a lot of those symptoms but I also have a lot of ilioinguinal-hypo gastric neuritis symptoms. I have been very medically challenging for all the docs I've seen. They cnt pinpoint my exact nerve or nerves that are injured. All test show nothing & the treatments or therapies I've tried have left me w/ no relief. Believe me I have tried everything!!!

I was injured June 17, 2005: in a golf cart hit by a car. I had jammed my left leg tight to keep me in the cart and the sidewise hit by the car injured all the muscles in my left groin. I call it a groin whip lash. Didnt have any pain for 10 days and then whammo had the worst pain Ive ever had except childbirth. Hasnt stopped since: 24/7. I wasnt diagnosed until 2008 after seeing multiple docs: orthopods, neurosurgeon, etc etc. Also have had many many treatment options including physical therapy (which made it worse), spinal injections (which made it unbearable), acupuncture (which was awful), etc etc. Chiropractic adjustments, ultra sound and massage have been helpful.

I was again on the Internet hopefully trying to find some new info, etc after another neurologist had suggested my pain might be from the pudendal nerve. I certainly fit the symptom and history picture. I checked for providers and found Dr. Karen Noblett at University of California, Irvine who specializes in pudendal nerve, pelvic floor disorders. Since, luckily, I have a daughter who lives in Irvine, I went to California and stayed 3 weeks, in 2008. She confirmed the diagnosis of pelvic floor myathesia: in other words all the muscles/ligaments in my p
pelvic floor were in spasm, tight as drums, pushing on the pudendal nerve. I suspect that my nerve is caught between two ligaments but that is hard to discerne

My best relief--over time-has been after I have been able to stay in CA and receive a series of injections of small amounts of a steroid and a numbing agent; like 3 times a week. (The first few are unbearably painful but then that begins to ease)

Included in this is to learn to massage these muscles internally (intravaginally) with a glass probe, massage trigger points internally and externally, doing relaxing stretching exercises, etc. Her theory is that this treat,ment over time relaxes these muscles and reduces the over excitability of the pudendal nerve.

I finally did begin to get relief; never without pain but certainly reducing it from 10s to 4s. I finally found another provider closer to home in Overland Park, KS next to Kansas City who also does these injections. They are incredibly painful while the injection is happening, but it truly does begin to help.

I now have found a physician here where I live (Bentonville, AR) who now does a pudendal block: not doing each muscle but just blocking the nerve. It isnt as effective as working on each individual muscle in spasm. I can reduce the pain 5-6 points simply by doing the vaginal trigger point massage myself; I couldnt have made it this far without that ability.

I mistakenly decided to again do physical therapy to build up some core muscle ability; has taken me 3 weeks now to settle it all down.

There is a physician in Phoenix who is cutting the pudendal nerve but is having only limited success: maybe 20% reduction in pain after long painful recovery. This doctor also does trigger point and pudendal nerve injections. There is also a doc in Denver, CO. Id have to look him up.

My best source is a book entitled, "Headache In My Pelvis" by Drs. David Wise and Rodney Anderson. Order from National Center for Pelvic Pain Research, Occidental,CA 707-874-2225. This book is like my Bible.

I dont think most doctors, especially pain docs, know how to treat this. I now am convinced that all the other pain treatment , other than Dr. Noblett, just worsened the pain. Im convinced that Dr, Nobletts theory, as is Drs Wise and Anderson, that this trigger point treatment is the way to go.

Im like you; used to be an avid golfer, working, gardening, very very active and over time my world has become smaller and smaller. The worse thing is sitting: that is awful. I carry around a pillow always. Because I never know for sure when I;m going to have a flare I dont do much socially any more, though do play bridge once a week. But I never sit very long, I get up and walk around, or just stand behind my chair, etc.

I do not believe there is a cure for this malady; not yet anyway, but I do agree with the muscle relaxing, stretchiong exercises, trigger point massage, and cortisone injections of the trigger points in the pelvic floor are the most effective. And pain medication: I take a long acting morphine and shorter acting Dilaudid, Lyrica and Valium to sleep. I do spend a lot of time sleeping; more than I want but still must have the pain meds; but at least with the above treatment the meds cover the pain. I understand morphine is the med of choice for nerve pain.

Remember, the injection into this very tight trigger point in the pelvic floor is excrutiating and at first will cause a pain flare of a day to multiple days. But as the inflammation reduces the level of pain decreases.

I get terribly despondent and depressed at times but am just now beginning to accept that this is how it is: no cure. I have to live with this pain, but I do have control of the LEVEL of pain.

Guess thats enough for now. Id like to read your --and anyone elses thoughts.

/';]]]

I had chronic back pain for the past 40 years and I controlled it with a TENS and very powerful drugs. About 7 years ago, I tried pulsed radio frequency treatment for my back. It took my pain level to a 2 from a 10 (Scale 1 to 10, with 10 you wish you could die). I had treatment on S1, S2, S3, L4, L5 and L2.on my lower back. First it lasted a year for about 6 years. The last two years it lasted 6 months. I am not medically inclined, but it was like a miracle. I don't know if this will help you, but it is worth a try if a pain doctor who performs this type treatment thinks that it may help you. You are in my prayers.

Happy to hear that PRF helped you. I tried this procedure @ Rochester Mayo & it made no difference. The thing with my injurgy is that no test show what nerves are damaged. We have a good idea as to what nerves they are but it's very difficult to disrubt their pathways. I have recently tried my 4 stimulator trial & it's been hard to get coverage in the area I need. Inguinal nerve pain in females is very hard to manage. It's been four years & I have not given up! I'm always open to ideas but as for now I'm coping w/ my chronic pain. I participated in a 15 week chronic pain group & they taught me great ways to cope & control my neuritis;) My pain used to control me.! Now I control it!!!!! The mind is a wonderful thing..... YEAH! I hope you continue to to live your life with little pain. One day I will:)

I have a very similar problem to yours--inguinal nerve damage and then pelvic floor issues. Can you tell me more about the nerve blocks? You said the spinal blocks were not effective--did they worsen the pain? Where was the block? Ganglion impar? Is a pudendal block different from a spinal block? You implied that was hepful, but not as hepful as trigger point therapy. I would be very grateful for any insights, as the pain specialist suggests blocks as the primary treatment. Thanks for any replies

How are you feeling? Still in a lot of pain? Who did you see in Fargo? & did it help?