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Hi, I was only able to take the cocktail for MAC for 9 to 10 mos. and suffered with GI and skin problems too severe so we had to stop. My vision was not affected however, my hearing was and though I've been off the meds for two years now, my hearing did not improve. It seems the time I spent on these antibiotics helped a great bit. I am due for a CT in a month or two and we'll see then how things look for me. I belong to a Mac group on FB that is private. We have nearly 90 members if you are interested. It is a Mac lung disease group and you could request to join if so interested. Nice bunch of folks on there. Good luck to you, John. 🙂
Replies to "Hi, I was only able to take the cocktail for MAC for 9 to 10 mos...."
Hi Cassiemarie,<br />
<br />
I am the same age as you are. Anyway, go onto FB and just type in Mac lung<br />
disease..you should be able to request to join the group. Good luck and if<br />
you have problems with that let me know and I can see what further I can do<br />
to help. Sorry to hear about the return of your MAC...Dot<br />
<br />
Hi John! Was wondering how to get on the Facebook group, need the feedback so bad with this Mac, god bless you..
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Hi,<br />
<br />
My name is Carole and I'm very interested in joining your FB group. I was<br />
first diagnosed with NTM (MAC) in 2004 at age 62. Went on the "cocktail"<br />
for 2 years and tested negative for about a year. It's back now with a<br />
vengance. No treatment this time...yet, due to poor health. Seeing a<br />
National Jewish doctor next month.<br />
<br />
Would love to read others stories and share experiences.<br />
<br />
THANK YOU!<br />