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I have been diagnosed with MAC and also brochiectusis from a pulmonologist at Mayo Clinic in Jacksonville FL after going to several internal medical Drs. who really never mentioned either of these diseases. They always did a chest xray and usually gave me a prescription for some type of antibiotics. When that didn't work they would try another one.
Dr. Leventhal said that it can only be seen with a CT scan and that it usually only affects thin white women.
MAC stands for mycobacterium avian, he indicated that it was spread through bird droppings that filtrate into the ground then into our water supply.
I have many of the symtoms others on this blog have explained. I usually feel quite well but get spirts of feeling rundown, no energy. After talking in a loud restaurant my voice is completely gone because of exertion. I also get sick when I travel, I assume because of the stress and change of my regular scedule.
I am very interested in this blog and comments from others suffering with these.
Replies to "I have been diagnosed with MAC and also brochiectusis from a pulmonologist at Mayo Clinic in..."
Hi! Thank you for your reply.sounds like my doctors are some quacks don't it?lol maybe that why I don't get better.ive been dealing with this since 2011, it pretty much got me bedridden now but on c oxygen, loosing weight so bad.i was on alot of antibiotics but no probotic so now c my stomach really ripped up.im c on nothing right now,so it's like no treatment,what antibiotics were you on that helped you overtake it? All your output helps me, god bless you.much love...
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WOW!! This is NOT what I have been told by my Mayo Clinic Doctor at Rochester MN!! This disease is called: MAI/MAC. All you have to do to educate yourself is google this phrase. One resource is: https://aidsinfo.nih.gov/education-materials/glossary/1608/mycobacterium-avium-intracellulare-(mai)-infection since it was frequently found initially in the HIV population.
You will note it is: Mycobacterium Avium-Intracellulare (MAI) Infection .. AVIUM WITH AN M .. NOT an N! (avian would indicate relating to birds) I was told doctors don't have a clue .. there is no accurate research as to how it gets in our lungs. Mycobacterium is in water .. in the soil .. all over our bodies .. it just is NOT supposed to be in our lungs. BUT there is NO accurate research showing how it gets in our lungs. PLUS my doctor has NEVER indicated anything about bird droppings since bird would indicate AVIAN .. NOT Avium.
So I am VERY confused as to just what your doctor is telling you because for myself i was ONLY diagnosed with MIA/MAC with a sputum culture which CLEARLY indicated EXACTLY WHICH strain of Mycobacterium I had. He ALSO did CT scans and Xrays .. but it was the sputum cultures that gave him the necessary info to know what to do about the MAI. That led my doctor to then be able to know exactly WHICH antibiotics would work against those two particular Mycobacterium that the culture showed I had . (Dr. Leventhal said that it can only be seen with a CT scan)
I guess my only suggestion is that you do your own "due diligence" and educate yourself about your illness and then don't give up until you have answers that satisfy you .. and your body. Good luck!