Connect
Comment receiving replies
I was diagnosed in 2008 with MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE (MAC/MAI) .. am now on 5 antibiotics. Working with Dr. Timothy Aksamit at Rochester Mayo Clinic .. he is a saint to have put up with me this long! I was terrified of the treatment . started the first antibiotic September 3, 2011 ... am now on all 5 antibiotics for 18 mos to 2 years. Am delighted at the very bearable side effects! If you google NON-TUBERCULOUS MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE (MAC/MAI) you will learn a LOT about the disease. But PLEASE do NOT get scared about all the things you read .. that is what I did and nearly refused to do the treatment until after a 2nd Micomacterium was discovered! Educate yourself for "due diligence" .. but take it all with a grain of salt .. you are NOT necessarily going to have all the terrible side effects of the antibiotics!
Good luck to you!
Replies to "I was diagnosed in 2008 with MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE (MAC/MAI) .. am now on..."
I was recently diagnosed last month with MAC/MAI I need more education I need a second opion I had a bronchosropy at University Wis. I would like to see a specialist that concentrates on this disease. I am a 16 year breast cancer surviver. I liked your information. I did google that before. But I have all sorts of questions. Not good at these chacts u can emal me please. Thank. u.
i have had mac for about 2 years need to ask some questions, david
any info on mac night sweats. david
how do i connect to people with mac. david
<br />
David I am out of the country so limited wifi .. return to USA October 7 ..could you write me then when I have better access?<br />
Best regards,<br />
Katherine<br />
Friday, 26 September 2014, 11:36PM -03:00 from Mayo Clinic Connect :<br />
okay, I\'ll contact you again when you get back. David<br />
<br />
<br />
Thanks David .. I\'m happy to help .. just as others have helped me!<br />
Katherine<br />
Tuesday, 30 September 2014, 10:40AM -03:00 from Mayo Clinic Connect :<br />
Connect
I have recently been diagnosed with mycobacterium avium complex and am trying to decide whether or not to begin treatment similar to yours. How are you doing? Are you still on treatment?