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Hi Susie
google "microscopic colitis support" for a well established online support group related to MC. The url is http://www.perskyfarms.com. They encourage gluten-free diet and have lots of recipes and information regarding what is gluten-free and what is not. Casien, the protein in milk, is usually the #2 offender for people with MC (gluten being #1), followed by soy and then eggs. IMHO soy is more prevalent and hidden in our foods and therefore more difficult to eliminate from the diet than gluten.
Some people have good results controlling their flares using Pepto Bismol and/or Immodium. Some take Entocort. But I think, and this is just my opinion, that the drugs just mask and control the symptoms. Ultimately people who change their diet to get rid of their food sensitivities are able to get control without drugs. It can be done. But everyone has their own path to take. The first step is to control the D.
I went gluten free about 6 mos ago and it was a big adjustment, but you get used to it. And the results for me have been dramatic so I'm not tempted by bread anymore.
Best of luck. You can get your life back.
Gabby
Replies to "Hi Susie google "microscopic colitis support" for a well established online support group related to MC...."
Hi DebE, I noticed a drastic improvement after about 6 weeks in my symptoms after going GF. From what I gather on the Potty People website (http://www.perskyfarms.com/phpBB2/index.php) everyone has a different time and path to remission. I suspect the time it takes depends on the amount of inflamation and irritation in the bowels one starts out with. Just because you don't have full blown celiac disease doesn't mean you don't have a gluten sensitivity. And there may be other foods that you are senstive to as well. Hope you get some relief soon.
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I've been struggling for over four years with collagenous colitis and still have not found resolve. I tried an elimination diet about a year ago for about 4 months and saw minimial improvement in symptoms and no improvement with the trips to the bathroom. I did not cheat and am very aware of all the hidden sources of gluten. This particular "diet" I eliminated all processed foods, and anthing with dairy, wheat, and yeast. How long did it take for you to notice that it helped? I am regretfully back on prednisone for the MC but have terrible eye burning and puffy feeling around my eyes along with dull stomach aches which I keep wondering if it's related to gluten sensitivity. I thought I would have noticed something within four months, now I'm begining to wonder if maybe I didn't stick with it long enough. I've been tested several times for celiac and it all comes back negative.