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donnaburch (@donnaburch)

Hypothyroid & Postural Tachycardia Syndrome

Autoimmune Diseases | Last Active: May 4 3:09am | Replies (34)

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My daughter is 15 and have suffered from migraines since she was four. We just saw a pediatric neurologist today through Children's Hospital in Milwaukee, WI. She had been having stomach issues for over a year then since just this past July passed out at work then again twice at school two months ago. Dr notices changes in her blood pressure and heart beat when doing the blood pressure so we were first referred to a cardioligist tne neuro. When the dr sat down with us today it was a shock to hear that she had had every sympthom but one on the list for this. We have to go down to Milwaukee for further testing. This poor girl has been through so much and is so scared. Any advice for me has a mom and what do we expect when going for testing?

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Replies to "My daughter is 15 and have suffered from migraines since she was four. We just saw..."

Hello @tdewall, welcome to Connect. I can't imagine how hard it is to go through the waiting for further testing to get to the bottom of your daughters health problem and having to deal with the anxiety. Thank you for being a strong advocate for your daughter. It might be helpful to write down a list of questions you have for the doctors before the tests. I think the more you can learn about your daughters condition, the more you can work with her doctors for a better treatment plan.

Did you see this story in an earlier post?
While we wait for others to join the conversation, you might like to read this story on Sharing Mayo Clinic:
Learning to Live Well with POTS Brightens Daily Life for Christine Esposito: https://sharing.mayoclinic.org/2016/12/15/learning-to-live-well-with-pots-brightens-daily-life-for-christine-esposito/

Are you able to share what your daughter's biggest concern is? Maybe others can offer some suggestions to help.