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Hypothyroid & Postural Tachycardia Syndrome

Autoimmune Diseases | Last Active: May 4 7:50am | Replies (38)

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@sdavisali

Hi Donna, my name is Susan and my 13 year old daughter has Autonomic Dysfunction very similar to POTS. It is a nightmare of a disease as you well know. We are going to Mayo this week for a 3 week intensive program geared to help teens with her condition. She is on a beta blocker to protect her heart, but other than that it is heavy salt intake, tons of fluids and regular exercise (treadmill 6 days a week for 30 mins). Of course, what 13 year old who feels awful can live up to that routine? Thus the cycle of missing school and lots of tears continue at our household. Wish I could be more helpful, but I do offer my emotional support!

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Replies to "Hi Donna, my name is Susan and my 13 year old daughter has Autonomic Dysfunction very..."

Hi Susan, sorry the delay in response. How did everything go for your daughter at the Mayo appointment?
I agree with you about the whole when they feel tired and awful not walting to exercise. Heck, just getting up to go to school is a work out. 🙂
Best of luck to you