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MCTD (Mixed Connective Tissue Disease)

Autoimmune Diseases | Last Active: Jan 15 10:29am | Replies (210)

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@lisalucier

Hello, @beekb - I wanted to add my welcome to Mayo Clinic Connect. You'll notice I moved your post here to an existing discussion in the Autoimmune Diseases group where many members are talking about multiple conditions. If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

That does sound very difficult for you as you try decipher what may be going on. I'd like to introduce you to @johnbishop @lucindaj1 @lioness @bluejean, who may be able to provide some support and input as you seek answers to the abnormal ANA blood test, inflamed bile docs with copper infiltration, and wonder about vascular disorder, insulinoma and connective tissue disorder.

At this moment, @beekb, what symptom is the most difficult for you?

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Replies to "Hello, @beekb - I wanted to add my welcome to Mayo Clinic Connect. You'll notice I..."

Thank u for your response. The insomnia, anxiety, night sweats upon early wakening, chest swelling/bloating despite wt loss and depression are the worst right now. I can take the back pain and the worries about the things they found and sure it is exacerbating by not sleeping more than a few hrs a night on med. I also worry about the medications and supplements I’m taking and the effect on liver. Like does fenofibrate cause the copper in the peripheral heptocytes? Or Wilson late onset -I am a researcher so look up things. But my anxiety prevents me fr articulating as well as I might. I had postpartum depression 20 years ago and on setraline for most of those 20 years. Last Oct with the fibroscan result I, to my folly, went off it. Back on and waiting for it to work. Using sleep herbal teas, lavedar oils and lotion, valerian and melatonin as in the past. Trying to walk a little and get sun. Appetite coming back and eating healthy, drinking lots of h2o. Working 3 days - fantastic employer - helps to be in land of living. Good support fr fam and friends. Made appts here at home to help get answers.