← Return to MCTD (Mixed Connective Tissue Disease)

Discussion

MCTD (Mixed Connective Tissue Disease)

Autoimmune Diseases | Last Active: Sep 18 10:07am | Replies (225)

Comment receiving replies
@bluejean

Thanks for hearing me! I have had the flu like fatigue for years since the weekend that Grave's disease hit me long ago. My general Dr. I have gone to for 25 years has told me over the years that the painful lymph nodes are probably harmless as long the pain keeps going away. This new symptom of sun rash has me most concerned now. It doesn't have the bumpyness and itchyness that either a sun allergy to a substance or an autoimmune sun rash would have. Two Dermatologists at the UW didn't know why I had it but told me to just wear hats and sunscreen. I still have the rash, the way it was in pictures after it calmed down for an hour after twenty minutes looking at the sun in July! I have always told my Dr I think I have another autoimmune problem that is milder because of additional symptoms. I know sun exposure it is bad for parts of you if an autoimmune sensitivity-it would be nice to know. I would just wear my sunscreen and hat and be happy if it was harmless. In one paper about UCTD it mentioned several studies of that disease where several more people said they had a sun reaction then said they had the malar rash. Maybe those like me are somewhere in the middle. I am stuck with a rash that will not go away. Red on my checks and forehead white under my nose. Is it harmless? The last Rheumatologist was dismissive (but he doesn't know the rash didn't go away) but I would prefer not to go back. I went to a different Rhuem. Dr several years ago (she was great!) when I got dry mouth but she doesn't take the insurance I have now. I live in a little county in the mountains. A lot of medical groups toward Seattle, the closest populated area to us, no longer take patients for rheumatology from other counties. I will have my general Dr at my checkup next month try to help find me one. That is the symptom that concerns me most. If it is autoimmune why did I start getting this new sun reaction that won't go away if I don't have ANAs anymore? Thanks-wonder if anyone has something similar.

Jump to this post


Replies to "Thanks for hearing me! I have had the flu like fatigue for years since the weekend..."

I do appreciate the Mayo Clinic. I am 70 to 80 miles from most specialists and this is one site I consult with questions. It would be nice to have a service where you could ask Drs. questions (or have actual visits with specialists) on the computer/phone. Thanks for all of the info on your site!!