Hallo i was diagnosed with mctd 6years ago and doctors were confident it would go into remission but never happened. I see rheumatology,cardiology,respiratory, E N T, podiatry ,pain clinic and endocrine. Now my lungs still continue to regress. Am on multiple tablets now I have a suggestion of chemotherapy to start soon. Am feeling hot all the time and dizzy. Pain management i suppliment with mindfulness. I work fultime 10hrs a day (as a nurse). I do feel frustrated but now i live for each day and try to be positive. I was angry for a few years until i saw it was upsetting my children. Now we talk about it and they know when I am not so well.

I tried flaxseed it made me bleed very heavy and continuosly for days.

Am still trying to find solutions but please try to be positive there are no quick solutions to this disease.