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MCTD (Mixed Connective Tissue Disease)
Autoimmune Diseases | Last Active: Sep 18 10:07am | Replies (225)Comment receiving replies
I know everyone has different symptoms at different times. I am not having to much problems with my hands yet. Some soreness and a few of my finger tips has numbness. My main thing is aches and pains in my shoulders. I usually have a headache every day. I have had some days that I felt pretty good but by the end of the day I am exhausted. Ive also had some pain in my legs like I have done major leg exercises. I'm just venting. would like to have more discussion with anyone that wants to chat. It feels like I am a lone wolf in my family. just feel like I can't talk about this because no one knows what I am feeling. ok thanks for reading.
Replies to "I know everyone has different symptoms at different times. I am not having to much problems..."
The rash is the worst. My RA Dr sent me to dermatology clinic. My issue is Everytime they add another Dr, I get thinking about it.
I would like to chat more to you. I’m Liyana and was diagnosed with mixed connective tissue disease two months ago.
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I know how hard it is when people don’t understand the fatigue. I have learned to set boundaries up for myself and limit my activities. I avoid stress, eat very healthy food and do stretching exercises and yoga. I am proactive and try to stay rested and being aware of my limitations has helped me decrease the number of days I feel fatigued. I go to physiotherapy which has helped with the numbness and as soon as my rash starts to show I take that as a warning I’m doing to much and I reduce my activities. Everyday is a new day with a variety of challenges but it is. Ice to know we can share on this forum.