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MCTD (Mixed Connective Tissue Disease)

Autoimmune Diseases | Last Active: Sep 18 10:07am | Replies (225)

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@jennyw13

Hi All, I am new to the US & I'm struggling to get to grips with the healthcare system & so I'm looking for any advice that you could share!
I developed an under active thyroid a few years ago, following pregnancy & was put on Levothyroxine. For several years, I have been experiencing a lot of symptoms - extreme fatigue, achy legs, weight gain, brain fog, numbness & tingling which were all dismissed in the U.K. as being connected to my thyroid issue. My TSH level forbthyroid is stable, so I couldn't get any further answers from my doctor.
Since coming to the US a few months ago, I have had some further tests which have identified a connective tissue disorder. I am convinced this is connected to my thyroid, but the doctor has referred me to a rheumatologist, who is not covered by my healthplan with United. She has put me on steroids in the meantime, which made me feel great for the first few days, but now all my symptoms are coming back.
Do I seek out a new rheumatologist? Or should I find an endocrinologist for my thyroid? Who would be the best to look at both possibilities? I've had lots of blood tests done already, so should I talk to a doctor online?
I'm living in florida, I've heard great things about Mayo, but I don't know where to start & I'd like to avoid seeing multiple doctors etc.
Any advice would be greatly appreciated.

Thanks

Jenny

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Replies to "Hi All, I am new to the US & I'm struggling to get to grips with..."

Hello Jenny (@jennyw13) - welcome to Connect. This a great place to ask questions and get answers. I would definitely recommend contacting Mayo Clinic because they are good at diagnosing difficult and rare health issues. If you would like to seek help from Mayo Clinic, please call one of our appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

You can find out more about billing and insurance at Mayo Clinic here: http://mayocl.in/2kk2hF8

Here is information about Mayo Clinic's Billing and Insurance:
http://www.mayoclinic.org/patient-visitor-guide/billing-insurance which includes information about Charitable Care and Financial Assistance at Mayo Clinic http://www.mayoclinic.org/patient-visitor-guide/billing-insurance/financial-assistance

Hoping you get an answer soon!

John

Hello Jennyw13, its nice to meet you. it is very difficult waiting for the right diagnosis and care we need. Im sure Mayo would be a step in the best direction for you. Steroids have many side effects, unfortunately sometimes we have to have them. I see a rheumatologist and he is also my primary dr. Maybe you can ask yours for a referral to the endocrinologist. Hoping you get help soon and welcome ro the US.