I have connective tissue disease which really means your aota,vascular,feet,legs,hands,arms,shoulders joints hurt terribly, maybe a different area each day.
The pain has gotten much worst. I di not know I had this unmaeed tissue disease until I had major aorta burst-dessection,disscetion also od caroids and stomacjh aort, then hour afrter that surgery my aorta heart valve had to be replacede.
I have since been in pain. However you look absolutly great on the outside so unless you tell people you have horrible pain and when u do they say" oh that cant be true YOU look GREAT!"
I am in a study at UAB ib birmingham as they are trying to name it as several in my family have signs or have it.
I ask has anyone had the lower back of thier skull hurt so bad -especailly when they lay down that they have to put a bag oof ice under it to try to help pain?
Lora tab does not help at all.
Does anyone out here have a connective tissue diseaser or symptoms of it?
judee

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