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MCTD (Mixed Connective Tissue Disease)

Autoimmune Diseases | Last Active: Jan 15 10:29am | Replies (210)

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@regeanna

I'm a 50 year old woman and was diagnosed with UCTD 6 months ago, so I'm new to the game. I still don't know alot about this disease but I just know I hurt a lot. I am not on medication yet, I was wondering how bad does it have to get before the Rheumatologist puts me on medication, I'm not sleeping because of the pain. Any advice would be greatly appreciated.

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Replies to "I'm a 50 year old woman and was diagnosed with UCTD 6 months ago, so I'm..."

@regeanna I am so sorry to hear that you are not sleeping because of the pain. Please let your physician know that, I would hate to see you go into a downward spiral because of inadequate pain control. The best thing for you to be is be your own advocate, do not try an put on brave face for your doctor, be honest. That is easier said than done, I know. Sometimes it takes a while to admit to yourself that it is really as bad as it is. Does that make sense? It may take some time to figure out what works for you, but you will get there... and just when you think you have everything under control your symptoms change or medication does not work well as it once did. Things with chronic disease are constantly changing and it can be frustrating at times... but you always have us here to get you through those times.