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MCTD (Mixed Connective Tissue Disease)
Autoimmune Diseases | Last Active: Sep 18 10:07am | Replies (225)Comment receiving replies
Hi! I'm newly diagnosed with MCTD. I'm 32 years old, married and gave two young girls. I work full time and I'm very type A. Honestly, my symptoms haven't disabled me, but right now the fatigue and trouble sleeping are bringing me down.
Can anyone offer suggestions to help deal with the aches and pains at night? Ideas for combating the daytime fatigue? Right now, I depend on coffee and energy drinks to make it through work. At night, I'll take Benadryl if it gets bad enough to knock me out. :/
I appreciate any and all advice. Thanks in advance!
Replies to "Hi! I'm newly diagnosed with MCTD. I'm 32 years old, married and gave two young girls...."
ML, I have been dealing with chronic pain for 10 years and will share what works for me, i make it a part of my meditating, since no amount of medications stop the pain.... I meditate into it by breathing in and while breathing out I maintain an image of pain leaving my body with the air expelled..... once I got into it the pain seems to lift or I am unaware of it....
Nighttime is hard. I take a marijuana gummy for sleep. My rheumatologist helped me get the medical marijuana license..
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Hi - I'm a single mum to a lil boy aged 9. I was fine until January this year. Very active mum. I work full time in a demanding job. I am plagued now with this fatigue. This is the first summer ever that I havent been able to get out and about and run around with my son. It's really gettingme down too. I just have to rest all the time. If I overdo it one day, I pay the next 🙁 I thinnk we just have to have a sensible diet (try to exercise - joke that is, since we have no energy) and stay positive ! good luck