← Return to MCTD (Mixed Connective Tissue Disease)
DiscussionMCTD (Mixed Connective Tissue Disease)
Autoimmune Diseases | Last Active: Sep 18 10:07am | Replies (225)Comment receiving replies
Replies to "Your case is interesting. I started having severe dizzy spells, heat flashes mixed with chills, skin..."
Hi @barblacanne,
I'm so glad you've returned to Connect! Thanks for the update; how are you doing?
Hallo i was diagnosed with mctd 6years ago and doctors were confident it would go into remission but never happened. I see rheumatology,cardiology,respiratory, E N T, podiatry ,pain clinic and endocrine. Now my lungs still continue to regress. Am on multiple tablets now I have a suggestion of chemotherapy to start soon. Am feeling hot all the time and dizzy. Pain management i suppliment with mindfulness. I work fultime 10hrs a day (as a nurse). I do feel frustrated but now i live for each day and try to be positive. I was angry for a few years until i saw it was upsetting my children. Now we talk about it and they know when I am not so well.
I tried flaxseed it made me bleed very heavy and continuosly for days.
Am still trying to find solutions but please try to be positive there are no quick solutions to this disease.
it would be good to test the thyroid the TPO antibody to make sure you don't have Hashimoto's thyroiditis and to do an EKG to make sure the electrical system is intact
Did you ever take antivert or have your ENT do specific maneuvers to get crystals of inner ear back in place? Antivert worked for me.
Hi
I have Sjogren's too, its now called "Sjogren's Disease"
For information, there is a foundation. Here is the link: https://sjogrens.org/
Hope that helps.
Good luck!
I did an exclusion diet called Auto Immune Protocol diet for 60 days. Then I tried adding a new food, one per week, to see if any increased inflammation and my CTD symptoms. Sugar is my main problem, causing next day symptoms of fatigue, leg cramps, buzzy numbness in feet and hands. I am also somewhat sensitive to rice, wheat, dairy and eggs, but sugar is the worst.
I received tremendous help from the pain clinic at Mayo Rochester, was referred there by a spine doctor at Mayo who was very good. You could try that route. I apologize I meant for this response to go to the following comments.