Hi Mel, My 79 year old father was diagnosed with polymyositis about seven years ago. Had been controlled on Cell Cept which was provided free by drug co - not anymore. Today he said his CPK is up to 3000 and doc is going to see about getting him some medicine that he gets injected twice a year. Any idea what that medicine might be? Have you had any success with any particular medicine? Thanks.

I am not sure of one that is just two times a year, I know the solu- medrol is done a little as possible. I think they use to try to get it back to a more manageable level. If that makes any sense.

Yeah, my dad might be mistaken on the two times a year med injection. Glad to hear you're doing better. Any advice or insight you have would be appreciated.

Hello, my name is Traci. I am in the beginning stages of diagnosis for polymyositis. I understand that is a general term for muscle deterioration and there are other names specific to the condition. Anyway, doctor wants to put me on prednisone for inflammation but the doesn’t stop the muscle deterioration. I’ve look up several medications for treatment and side effects all involve cancer or liver damage. We’re you on multiple medications for your treatment? I’m not happy with my treatment options. Also, did you have a muscle biopsy? MRI? Or something else?
Thank you for any direction you can offer. 🤗